History of ISCA

The International Scientific Conference on Albinism – ISCA – was created by the Global Albinism Alliance (GAA) in 2022. It is currently the cornerstone of the Alliance’s workstream aiming at improving knowledge about albinism.

ISCA is THE meeting point worldwide for all scientists interested in sharing and improving knowledge of the biomedical aspects of albinism. It is a space where researchers and healthcare providers from all countries of the world can meet, exchange and discuss solutions to improve the health of those with albinism.

The inaugural ISCA conference took place online in November 2022, building on the momentum of the European Days of Albinism (EDA) conference series. From 2012 to 2020, the EDA conferences were co-organized biennially by Albinism Europe—a network of European associations representing individuals with albinism—and a different national albinism association from Europe.

The EDA conference series was created in 2012 by Genespoir, the French association for persons with albinism, with the support of the following scientists:

• Robert Aquaron, Marseille, France
• Benoît Arveiler, Bordeaux, France
• Glen Jeffery, London, UK
• Barbara Käsmann-Kellner, Homburg, Germany
• Lluis Montoliu, Madrid, Spain
• Maria-Vittoria Schiaffino, Milan, Italy
• Alain Taïeb, Bordeaux, France

List of ISCA and EDA conferences (in reverse chronological order)