The Global Albinism Alliance (GAA) is the official organizer of the ISCA 2022 conference.
The GAA is a not-for-profit organization registered in the USA. It was launched in January 2020 and is currently operated by a small staff and volunteers.
The GAA aims to unite albinism organizations globally. It is the voice of over 250 associations of persons with albinism and other NGOs serving the albinism community in all regions of the world. These organizations operate at the local, national or international level. They all contribute to improving the lives of individuals and families affected by albinism.
The GAA’s Vision is “a world where persons with albinism enjoy the best possible quality of life”.
The GAA’s Mission is based on three main pillars:
- Support albinism organizations around the world so that they are stronger and more impactful
- Improve knowledge about albinism
- Advocate at the global level to improve the life of persons with albinism and their family members
The idea for the GAA was launched in January of 2020 during an exploratory meeting held in Paris, France.
The organization of this meeting was initiated by Ikponwosa “I.K.” Ero, former UN Independent Expert on Albinism. The meeting was sponsored by Under the Same Sun and the Open Society Foundations. Representatives of albinism organizations and others advocating on behalf of those with albinism from 6 continents (23 countries) voted unanimously to form a global alliance for albinism organizations. They approved a Pilot Project to work towards establishing a formal organization and elected a Pilot Team.
After a two-year pilot phase, the Global Albinism Alliance was officially registered in October 2021 in the State of Delaware (USA).
For more information: www.albinismalliance.org.